Friday, April 13, 2012

"Keep On, Keepin' On"

"Keep on, keepin' on," that's what we're doing at this point.  It's been a while since I have posted.  Things have been really busy around here.  Andrew was officially recently approved for services through the state for children with disabilities.  Now we have an aide coming in each day to help with him.  I'm very grateful for these services, however, it's a big adjustment having someone in your home daily that you don't know. 

Andrew will also be able to receive additional therapies outside the school system.  I have been wanting this for a long time and it's definitely long overdue.  He's been having an increase in seizures at night and has had to add another seizure medication to his regimen.  Around the same time, he also had an increase in his meltdowns.  Now we have had to reluctantly had to add another medication for that as well. 

We are in pursuit of a service dog for him.  We are hoping this will help with his behaviors and give him the sense of security he needs, allowing him to possibly come off of some of the medications he is taking.  Also, this will hopefully help provide a bridge for him socially as well.  Currently, other children do not approach him to play or engage with him. 

We recently went back to the Shriner's Orthopedic Hospital and he was able to quit wearing the AFO's (braces-ankle, foot orthotics) for now.  Yeah! One less thing to mess with!  They are just going to continue to monitor his growth in his hips and tibias for now. 

Pray that his seizures get under control!  The neurologist has also recommended intense ABA Therapy and if there's anyone that knows of any in the Charlotte, NC area, please let me know.  Our next step is to work on starting all of the therapies that he needs, pursuing a service dog, and possibly a safety bed as well.  If anyone has any recommendations in regards to any of these, please let me know.  Thank you all for your thoughts and prayers!